In Memorium

In memory of all those special children who have passed on, some words for those who love them....

When you have someone you love in heaven, you have a little bit of heaven in your home.

 Tears are words the heart can't express.

 

Goodbyes are not forever.

Goodbyes are not the end.

They simply mean I'll miss you

Until we meet again.

We will never be the same as we were before this loss, but are ever so much better for having had something so great to lose.

Do not regret growing older.

It is a privilege denied to many.

Brick by Brick

I just heard this song, Brick by Brick by Bess Rogers. It made me think of all the little, almost unnoticeable, changes that our daily efforts produce for our special kids! Of course, this is the case with all children (and all adults, for that matter), but when other kiddos are reaching and surpassing milestones, we cherish and celebrate the "inchstones"! And, oh boy is it worth it!!! 

Three steps forward and two steps back we go, 

You try and push harder, they push right back, I know, 

That time moves fast and change moves painfully slow. 

It's hard to see the shift when you're so close. 

Brick by brick, we are building. 

You won't see for the longest time, 

We're building a new life. 

You plant a seed and wait for it to grow. 

They hate it now but they're too scared to know, 

That their children's children will sit underneath it's shade, 

And their children's children will bask in the love you made. 

Brick by brick, we are building. 

You won't see for the longest time, 

We're building a new life. 

It won't show for the longest time,

Little Bird

 

 I was listening to this song with a tender heart and it made me think of our sweet little ones. Thought I'd share :)

  

Band is on the run 

You're my little one 

Waiting in the wings 

So I whisper in your ear 

Let's get away from here

When the day is done 

I hear who'll wait 

Without some day 

Steady cause that day will come 

Now my little bird Get along 

You're the heart of these songs 

And when it rains so hard 

I let it open up the stars 

And you can climb All the trees 

Tell the world what you can see 

Cause you can see so far 

 I listen to all the very young 

Turn around they're gone 

Seems so suddenly 

And kindred hearts will never age 

The singer on this stage 

Wanting to go home 

I can hear that slow way 

Without sometime 

Following the things you've done 

But you know for now 

There's a scene that keeps bothering me 

When you're asleep at night 

And it's quiet and it's right 

And then you're grown 

And you're gone 

Like a bird from my arms 

And when I wake and see 

That you're down there fast asleep 

Now my little bird Get along 

You're the heart of these songs 

And when it rains so hard 

I let it open up the stars 

And you can climb 

All the trees 

Tell the world what you can see 

Cause you can see so far 

Now that's a way off 

It's like the summer's on the run 

It's like the rain keeps coming on 

But we're not there yet 

Cause you're fast asleep

 

Bamboo Brace

I got this email from Sue of Professional Therapies, oh, about two months ago. I finally got around to taking a peak at the information and was thrilled at what I found! Read this over and see if this might help your kiddo or any of your friends and spread the word!....

"My husband and I are both physical therapists with a pediatric practice in Salt Lake City. About 10 years ago my husband (who is NDT trained) felt there was a tool missing to help him treat children with cerebral palsy and over time (and many prototypes) we developed a pediatric elbow brace called The Bamboo Brace that we manufacture locally.

"Although we originally developed The Bamboo Brace for kids with spastic hemiplegia type CP we soon realized it's success in using it for children with Rett Syndrome, Brachial Plexus Injury, sensory disorders, global motor delays, etc. Our brace is unique because although it promotes extension at the elbow it comes with 5 different flexible and interchangeable stays that adjust to varying amounts of spasticity/instability depending on the individual child's needs. The above link will take you to our website for more details and information on how it works and who can benefit from using The Bamboo Brace."

About the Bamboo Brace

Bamboo Brace reviews

Bamboo Brace on facebook

Dad, Look What I Can Do!

I know it's unlikely that any of you haven't already seen this video, but I had to share it anyway. :)

"A boy with cerebral palsy was told he'd never walk, but did just that when he saw his returning Marine dad."

Peaceful Child

There have been so many successful and wonderful stories as a result of this blend of essential oils. There has even been a news story about it on MSN.

Peaceful Child Essential Oils Blend: Why.



Peaceful Child Essential Oils Blend: How.

Despite Our Differences

This video makes me happy.

To You

To all the amazing, lovely, intelligent, happy, beautiful, marvelous mothers who inspire me every single day! Thank you!!!

Bigger Than My Body

 

I've heard this song approximately one zillion times before, but the other day I heard it and thought of Chloe. My biggest fear is that people do not see her the way I see her. They see a frail body in a wheelchair and make assumptions about her ability to understand or her potential (or lack thereof). I think I might print these lyrics and hang them from the back of her wheelchair. Because my beautiful child is SO MUCH BIGGER than what most people can see!...

Someday I'll fly

Someday I'll soar

Someday I'll be so much more

Cause I'm bigger than my body gives me credit for

Bigger Than My Body by John Mayer

Good Ideas

How fabulous are these ideas!?! If you have any other ideas to share, please leave a comment!

An easy, low-priced way to isolate the index finger with iPad use.

Can I get a collective hallelujah!?!

DIY no sew floor pillow... Made just like the no sew blankets just in a circle and stuffed with polyfil.

DIY Shaking Bottle I-Spy Toy

O-Ball filled with shiny paper.... sensory heaven for grabby little fingers :)